SirChenjin
New Member
Hi all,
I wasn’t sure of the best title for this post but I could really do with some help.
I’ll try and keep it short. In 2015 aged 28, I was diagnosed with a brain tumour. I had surgery straight after but due to my tumour being found after having a status epilepticus, I lost my licence for a year. At that point, I think my oncologist wrote to the DVLA. When my year was up I eventually got my licence back as I had no other seizures.
In 2019 my tumour came back. I had another surgery followed by 6 weeks of radiotherapy and I’m currently 9 months through a years worth of chemotherapy. This recurrence came as a massive massive shock as it grew considerably in a short period of time. I was absolutely in bits for a long time. Radiotherapy to the brain causes huge risks and side effects, particularly with the high dose I had. It was something we had all hoped I would need much later down the line.
One of my oncologists sits on the Medical panel for the DVLA, I asked his advice via my specialist nurse and he said for my type of tumour I can reapply one year after my ‘primary’ treatment which was the radio. So I will be one year clear in mid-June. I have not driven since January 2019 when I had my second operation and still do not suffer from seizures, thank god.
Here’s where the problem lies. Upon talking to her, it appears I was supposed to contact the DVLA myself but I must have genuinely not heard that from him as I was in such shock at the time. At this point I was transferred to the care of another oncologist for my active treatment and the driving was never mentioned again.
I have tried to call the DVLA to get the D1 form but the website says they’re only dealing with key workers at the moment which is understandable But it means I can‘t get advice from them. I should add that I am also quite worried about ending up in trouble or with a big fine. I am also worried about going back to ask my oncologists advice as he his bedside manner is unbelievable and I have to brace myself when I see him as he can say very upsetting things, not intentionally but I think he may be on the spectrum. He is a top oncologist but can be very rude and has said some awful things to me (including that my husband will leave me if I don’t pull myself together after getting depressed in the wake of my life being turned on it’s head overnight)!
I’m so annoyed with myself for not realising earlier but in my defence, my tumour was very large when they found it, it had silently been growing for 10 years until it caused my brain to swell so much I ended up in a coma in ITU. It measured 4.2 x 4.5cm and it is located where the ‘memory’ is controlled. The sheer size of it has caused irreversible damage to that area and I reguarly forget things.
I am so keen to get my licence back as I have 4 young children and logistically, it’s been difficult to get out and about, although I am on the shielding list due to still having chemo so won’t be going anywhere anytime soon.
Has anyone ever not surrendered their licence and if so, what did you do?
I wasn’t sure of the best title for this post but I could really do with some help.
I’ll try and keep it short. In 2015 aged 28, I was diagnosed with a brain tumour. I had surgery straight after but due to my tumour being found after having a status epilepticus, I lost my licence for a year. At that point, I think my oncologist wrote to the DVLA. When my year was up I eventually got my licence back as I had no other seizures.
In 2019 my tumour came back. I had another surgery followed by 6 weeks of radiotherapy and I’m currently 9 months through a years worth of chemotherapy. This recurrence came as a massive massive shock as it grew considerably in a short period of time. I was absolutely in bits for a long time. Radiotherapy to the brain causes huge risks and side effects, particularly with the high dose I had. It was something we had all hoped I would need much later down the line.
One of my oncologists sits on the Medical panel for the DVLA, I asked his advice via my specialist nurse and he said for my type of tumour I can reapply one year after my ‘primary’ treatment which was the radio. So I will be one year clear in mid-June. I have not driven since January 2019 when I had my second operation and still do not suffer from seizures, thank god.
Here’s where the problem lies. Upon talking to her, it appears I was supposed to contact the DVLA myself but I must have genuinely not heard that from him as I was in such shock at the time. At this point I was transferred to the care of another oncologist for my active treatment and the driving was never mentioned again.
I have tried to call the DVLA to get the D1 form but the website says they’re only dealing with key workers at the moment which is understandable But it means I can‘t get advice from them. I should add that I am also quite worried about ending up in trouble or with a big fine. I am also worried about going back to ask my oncologists advice as he his bedside manner is unbelievable and I have to brace myself when I see him as he can say very upsetting things, not intentionally but I think he may be on the spectrum. He is a top oncologist but can be very rude and has said some awful things to me (including that my husband will leave me if I don’t pull myself together after getting depressed in the wake of my life being turned on it’s head overnight)!
I’m so annoyed with myself for not realising earlier but in my defence, my tumour was very large when they found it, it had silently been growing for 10 years until it caused my brain to swell so much I ended up in a coma in ITU. It measured 4.2 x 4.5cm and it is located where the ‘memory’ is controlled. The sheer size of it has caused irreversible damage to that area and I reguarly forget things.
I am so keen to get my licence back as I have 4 young children and logistically, it’s been difficult to get out and about, although I am on the shielding list due to still having chemo so won’t be going anywhere anytime soon.
Has anyone ever not surrendered their licence and if so, what did you do?
